Partial Molar Pregnancy

[izzy4real]

Hi Lani, I'm haing trouble sending Emjee the link....would you mind having a go please.

I'm waiting on my results as we speak, but you are right it's a low dose if its required. Apparenty an injection or a tablet, and just a one off, so I am sure the side effects would be mild, if at all.

[Lani81]

hmm i cant pm emjee either, i think you have to have over a certain number of posts in order to recieve pm's. Oh well, if you google my molar pregnancy, its the first site that comes up, and you can join the support group from the main page.

got my for your results to be nice and low today izzy.

[izzy4real]

HOORAY, levels dropped from 581 to 321...Not over yet, but that's the best drop I've had, so the dr is happy!!

I hope you are going well Lani, not long till your scan now, I hope you are excited to see your bubs, I know it would be hard to not let the fear take over.

Emjee, I hope you found the link ok. Let us know how you are going..

[Lani81]

izzy! yay! that is a great drop for only 6 days later! so glad to see its coming down by itself without further treatment. Another week til you next test?

i decided to push my ultrasound back a week so ill be 8 weeks. just didnt want to take the risk that the baby might be too little for a heartbeat at 7 weeks. everything seems to be ok at the moment. When i had my molar i had brown spotting from 5.5 weeks - no sign of that at the moment, so that makes me a lil more confident. Plus im nowhere near as sick as i was last time. so fingers crossed.

[izzy4real]

Yes Lani, Weekly testing fom now. So that's great!

Thats a good idea to push it back to 8 weeks. I had dating scans with both my boys, both just days away from the 8 week mark, and there was no missing the heartbeat, so 8 weeks will be perfect. You know, I had the brown spotting too, but did with DS1, which was fine, so I was not concerned at all. But that's great you've had none. I read that you can be really sick the the molar, I was not sick at all, not even a day. But I obviously had the enlarged uterus because I was huge, and was just putting it down to baby #3.
Hang in there, the 8 week mark will be here soon. Are you having you scan done at an obstetric ultrasound centre? If it was a molar (which it's not) I am sure any sonographer would pick it up anyway, if that's what they are looking for in particular.

[Emjee]

Hi Ladies, I've just come home from hospital, I have an overnight stay every fortnight while having chemo, I tell myself it's a stay at a 5star hotel! I've had good news, (an ending to my never ending story) my last blood count was 3!!!Yay!! This means I only have to have one more cycle of chemo & then just follow up blood test for a fair while!! The chemo will be over & done with by xmas!! What a wonderful gift!

Izzy, it's such a wonderful feeling when you get the new results each week of the HGC levels. If you do have to start the chemo (if the same as me) to start with was a injection in the rear of Methotrixate every 2nd day for a week & then a week off, I didn't have any side effects only tiredness, but I've been working still (part time). They started me on that treatment when my HGC counts leveled out at about 1080. Then a month ago my HGC stopped again at 80 so the oncologist started the new treatment (which is 8 different drugs), which has worked, the side effects can be more severe but so far I'm just a little more tired & my hair is just starting to fall out, (not much just thining), I've been needing an excuse for a new short funky hair style any way. The oncologist & fertilisation Dr have me on the pill (I still have my overies) to minimise the effect of chemo on my eggs, & say that chemo shouldn't do damage to them. I hope this helps & not scares you of what might come. It can be a real inspiration going into the oncology ward & seeing the people that cancer has effected, most of them look on the bright side of life & really put in prespective what I've been through & how lucky I am.

Lani, good luck with your scan. It was a little hard to start with listening to people talk about their children & expectancy, while I have to wait awhile now for that part of my life to come about I'm starting to feel clucky again & just can't wait to start a family of my own. I wish you all the best!!

I'll try looking up the link your telling me about, I'll let you know how I go.

Thanks

[Lani81]

izzy- u and i were so opposite with our molars lol. I didnt have the enlarged uterus. i never showed at all. But oh lord, the sickness was unbearable. I felt like i was constantly on the verge of vomiting. Even if i had only thrown up a minute before. There was never any relief. i had no energy - couldnt even walk up a flight of stairs without help. My mum would come over every weekend and do all my housework cos i couldnt get out of bed. For 6 weeks, i only left my bed to go to work, and even then i had so many sick days that i had to tell everyone i was pregnant cos i was being so unreliable. it was honestly the worst experience of my life. Tho i would have done it all again if it had meant a healthy bubba.

im just having a scan at the local radiology practice as ill be going through the public system. Their just looking for a heartbeat and bubs to be the right size for dates. If anything is off, ill go straight back to the specialist at the hospital that took care of my molar.

Emjee congrats on your results! i was so happy to read that. I really struggled with the whole not being able to try again straight away, and seeing other people that were pregnant. Babies didnt bother me too much, thankfully, cos my best friend had a baby 4 weeks after my d&c. I thought id struggle with him, but i didnt. i adore him even more if thats even possible. i was pretty miserable until after my due date in may. It got easier after that. Felt like there was a light at the end of the tunnel.

[izzy4real]

Emjee, that's such great news!!! It's such a terrible ordeal to go throuogh, so I am so glad you'll have finished hemo in time for christmas, and sporting a funky new hair do, you'll feel like a million dollars! Yo havn't scared me with your experience, I have read all I can & have friends who ae nurses, so I prepared I think. Hoping for a big drop with Monday's bloods! 2 weeks after my d&c my bes friend told me she was pregnant, I was upset at first, and thought how do I deal with this, but somehow I have. I struggled with pregnant bellies in the street for a week or so, then thought, I just wonder what that lady has been through to get here, maybe she was in my shoes not long ago, so that's how I am dealing with hat, and make myself smile when I see a belly.

Lani, Wow, we were total opposites hey! What a bizzare thing it is. I went through the public system too, but all my scans have always been at an obstetric & gynaecological ultrasound, and the cost is only around $30 more from memory, if you are not 100% happy at you clinic, please look into it.

Now I have an odd question.. Do you get your period like normal, or not until your levels reach zero? I am hitting the 4 week mark since d&c & just wondered?

[Lani81]

izzy - i think i got my period back about 4 or 5 weeks after d&c. i dont think my levels were zero yet. they were low, but not zero. i went back on the pill for 3 months, then went off it cos i didnt want any trace of it in my system when we started trying again. my period has been pretty normal ever since - varies between 28-35 days but thats pretty normal for me.

my mum is a radiographer and works at a private practice that also does ultrasounds. I get em for free cos im immediate family of an employee. so they treat me pretty good there lol. i am having my first scan done somewhere else tho, cos i dont want to tell my mum yet.

[izzy4real]

Thanks Lani. I just had no idea what to expect. I've bee spotting n & off since d&c anyway.
That's great your mum is a radiographer. After you tell her, that will be great to go there!
My levels were 329 last week, 197 this week WOOHOO.....

[Lani81]

hey thats a great drop in number hun! you'll be in double figures next week ill bet!

Yea i cant wait to tell my mum so i can go to her work. only a few more days until my scan...im completely terrified. im too scared to get excited, just incase theres no heartbeat. im being a pessimist i know, but i just dont want to get my hopes up too much. Its in the back of my mind, hey your going to have a baby in july, but i dont think about it much. Wont feel real until we see bub is ok on the ultrasound

[izzy4real]

Lani, I'm guessing your scan is today???
Everything's going to plan...
Let me know how you go,
Izzy.

[Lani81]

yep scan was tonight, and everything is fantastic! im so happy and relieved. bub is measuring 8wks4days which i think is a bit out - i was charting so i know when i ovulated, tho i know scans can be out by up to a week so not at all concerned. Am happy to run with the 8wks 4days cos that means im 12 weeks on xmas day!

bub is such a cute lil blob with its lil arm and leg buds and tiny lil heart beat. finally feels real, and that all the sh*t weve gone thru in the last year is now worth it. i think i appreciate it more than i would have..know what i mean? so just gotta stay sticky for a few more weeks and get to that 12 week scan!

did u have another test today? how'd u go?

[izzy4real]

Hi Lani.

Sorry, been offline, we moved house.
WOW that is fantastic news, I can imagine the relief ad excitement you are feeling right now!!!! I am so happy everything is progressing as it should. It's the most wonderful exprience being pregnant, now that you know it's not a molr, enjoy every second!!
My test last friday only dropped to 114. I have had bleeding as well, so had an ultrasound on Wednesday. The look on her face told me everything! She showed me the screen, and it was horrible, all this stuff that shouldn't be there. I spoke with my gp and he said another curette. I refused public this time, and saw an ob today who is doing the curette on monday in a private hosptal as a publicpatient. Not worth another stuff up. It's around $1300 which isn't too bad. This time with a camera to make sure all is gone. They are unsure whether its been left over or regrown. As my levels are dropping thats a sign it's leftovers, but as they are dropping slowly, it's not a definate. After the curette he said my levels should be 0, otherwise chemo would be discussed. I am sarting antibiotics today as they don't want to risk an infection and multiple curettes poses a risk to damaging the uterus. So it's still not over hey!
I'll let you know my results.
I hope you have joined a belly buddies group, the support & information is fantastic!!

[Lani81]

ohmy god izzy! thats terrible. Your levels are pretty low so sounds like leftovers to me as well. but bloody hell, couldnt they have done it properly first time? Definately worth the $$ to get it done right and have this just be over!

Keeping my fingers crossed u dont need the chemo hun. im sure the 2nd currette will do the job.Let me know how u go.

yep i joined a belly buddies group. Its good to be able to talk to other people at the same stage, especially as we havent told our families or friends yet (well apart from my mum and two or three really close friends who guessed). I have my 12 week scan on the 29th, but we'll tell our families on christmas day. now that ive seen the heartbeat i feel ok about doing that. We'll wait til after the 12 weeks scan to tell all our friends and my work.

[tempus moriendi]

I'm so sorry to hear what you've been through. Sending cyberhug and praying for the best with your next treatment.

[izzy4real]

Hi Lani. Home after curette #2, he is confident it's all gone now as they used a camera! My levels are now 50 (YAY), and they are giving it 2 weeks to hit 0. I feel goo today, just a little tired, but nothing like last time after the blood loss. So I'll get the bloods done in weeks, & hope they are 0.
What a lovely Xmas suprise for those who havn't already guessed! Being 12 weeks on the day makes it special! Let me know how your 12 week scan goes! I'm sure it will be as positiv as your 8 week one. Thanks lani for all your support, you've been amazing.
tempus moriendi - thanks for your thoughts, hoping this is the end of it all!

[Mewithbaby]

Hello girls!
I have been reading different posts from time to time about PMP but found this one to be the most connected to my story.

Here is how it went (in brief) and it hurts to go back and recall this time.
June 08-Had my 29th and was so happy with my life, my marriage everything was ideal

June 08-Discovered I was pregnant (planned) and conceived on 1st go...

Soon after I had some minor spotting which the gyno and midwives said was a threatened M/c but after I had my 7 wk ultrasound and there was a healthy heartbeat I was told not to worry and everything was fine.

July 08 - My father in law gets diagnosed with cancer, our whole life turns upside down as it is a sever one. In the mean time I am worried like crazy about my spotting, feel really uncomfortable and have dreams of losing the baby. Deep inside me I know this will not go to term and that something is wrong although we had a good heartbeat.
Numerous calls to gyno and I am still told everything is fine.

September 1st 08-12 wk Ultrasound and I am feeling very nervous.
I am in the uoltrasound room and the baby does not look like a baby. I am being told it's heart stopped at 8wks and I had a missed m/c. I go in for a D&C the same day.

September 23rd (7wks post D&C) I visit my gyno for follow-up and she said that we need to make sure HCG is dropping. I ask what will happen if it drops slowly etc and she said casually "Chemo"! I freak out and ask questions...she mentions the word molar and that my placenta was examined and they found a partial molar.... My husband and I leave her office quite frightened... my father in law was across the street at the hospital having chemo, so you understand how we felt. I go straight away for a bloot test... 7wks post D&C it comes back at 10.

I have been having tests every two weeks and last fortnight I was down to 1.
It has been going down slowly but surely...
The day I discovered I had 10, with the shock of finding out about the partial molar, I stressed so much waiting for the results that I sweated all day, my legs were shaking and I got severe stomache cramps. Shortly after I think I got irritable bowel syndrome from the stress I went through.

Since then, we lost my father in law to cancer, a month a go... and two days ago my husbands grandma also passed away.
While I was pregnant I felt alone and confused... my husband had a lot on his shoulders and had to take care of his dad who was dying, so I felt more and more alone... I think he took it for granted that I was experiencing fears and complications with my pregnancy and when we reached wk 12 and D&C he broke down....

Our life changed from June onwards. Everything was so beautiful and good for us, then we had the partial molar, lost his dad and grandma and I am still waiting to get that ZERO test result. I am close, but we have endured massive amounts of stress in the mean time.

I have had two periods spot on on 28 day both times - these were real periods, not bleeding after D&C. This month (December) I was due on the 13th and I am now 3 days late.... should I be worried? My HCG was down to 1... is this hormonal? It could be stress related as my naturopath said I have had adrenal and exhaustion from the stress and events of this year....
Does it mean I did not ovulate this month and may miss a period?

I have had more questions answered by reading forums and going on google than speaking with gyno.
I dealth with the loss of the baby fairly fast, within 2 weeks my spirits were up as opposed to other women who mourn, I just dealt with it. I think I had to because we were losing my father in law and I had to keep it together... but lately I am finding that I am thinking about the time I was pregnant a few months ago and everything is going through my head again.

I have some left over anger inside me because my husband did not give me the attention a pregnant woman needed. He was 100% on his dad and I was second priority. He has apologised and I understand how he felt at the time, but I still have some left over resentment inside me.

Anyway, that is my story... one very difficult year for us....
This was going to be our first child... now we are left with a bunch of emotional mess and my husband is grieving the loss of his dad and grandma and is very silent, not him self... I doubt wether we will try for a baby for at least another 6 months. We need to get our life back on track again.

I have another blood test this week, hope it's zero....wondering where my period is...but will wait.
I pray to God that 2009 gives us double the hapinness we missed out on this year... because if you think about it, we experienced 3 losses! Not easy!!!

So when you think back on your situation, think of what we went through....
I saw death with my own eyes and was there when my hudbands family members passed away... very traumatic for someone who experienced their own loss let alone the scare and stress of a partial molar pregnancy!

Blessigns to all and keep positive!!!

P.S My nickname symbolises my vision for 2009. Me-with-baby. If I can see it maybe I can conceive it!!!!